||[Sep. 19th, 2005|03:34 pm]
Paruresis: The Shy Bladder Syndrome
Does anybody suffer from shy bladder on top of already having bladder problems? I have Interstitial Cystitis (IC) which means I have very high urinary urgency/frequency (bad day every 3-4 minutes, "good" day 25+ minutes).
Sometimes I really can't go in public bathrooms and stay in there for like 15 minutes, before coming out crying and running back in 2 seconds later, and having to go round in that circle. I also can't pee if there's someone close to the bathroom door inside, or even if people are waiting for me to say, start watching a movie or whatever. And at other people's houses I find it a struggle.
I've never tried the meds to help relax the bladder though because I'm scared - with already having to pee a lot) I'd be peeing even more than I already do, or even become incontinent. I can't describe it but having IC, when I have to go, I have to go, I can literally feel the urine almost coming out..yet as soon as I sit down on the toilet, and I'm still bursting, nothing comes out. Sometimes I can only pee a tiny amount, then tense up again.
I find that layering the toilet bowl with a few sheets of paper kinda makes it easier sometimes..it takes the noise away..has anyone else tried this, or got any other tips?
I think this all started in high school (I was made fun of when I developed bladder problems) and I remember going to the bathroom mid-class once, and there was a group of girls skipping class all gathered in there, and when I went into the cubicle they were all laughing and started throwing wet paper towels onto the ceiling above me. I could not go. After 5 minutes I ran out the toilets right over to the other side of the school grounds to use the other bathrooms, and ended up being another 10 minutes before getting back into class and getting into trouble for being gone so long, ever since then it's built up over time. Before that day I used to be fine about peeing when other people were close by.
I've asked my DR about learning to use a catheter, but he simply says "that wouldn't be appropriate", and that's taking into consideration both the ridiculous frequency and shy bladder!
I also suffer from agoraphobia (I've not been diagnosed but have twice had counsellers to try and help) and extreme travel phobia, both come back to my bladder problems.
Anyway, thats just me:)